Is there a doctor in the house

Skywalker

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Got a question from anyone who may be in the neuro field or know someone who can shed a light on this.  I'm Active Duty AF and going to meet a medical board within 4 weeks and be retired.  I was submitted to the board about 6 weeks ago.  However, in the mean time I had an MRI done becuase of some numbness in the arms for past few years that was of concern.  The doctor at a nearby base ordered an MRI on me.  After 7 weeks they had not made contact at all and I remember to go to my doctor and request status from the Neurologist on findings. My doctor said in a quite frank way "you have consistancies with multiple sclerosis".  Here is the deal, they were not going to say a word since I had already been submitted to a medical board and this would mean per Air Force Instruction (AFI) that the Military Treatment Facility Commander would have to recall my initial Narrative Summary (NARSUM) due to signaficant change in members health.  Trust me, they want this to just go away!  I force their hand and ingage with the neurologist and took just over 2 more weeks to have the 1st appointment with him for what should have been a discussion on issues/concern/proper diagnosis and treatmet... bla bla bla.  In the mean time I'm told the medical board will not wait and it will go on for I do not have a difinitive diagnosis.  Exactly whey the AFI exist to pull the medical submission to get a difinitive diagnosis.  With me on this.. drag their feet while pushing forward becuase with a difinitive diagnosis on my problem and if it's in the ballpark of MS, then the AF and not the VA but the AF will have to tac on an additioal rating and for MS it would be a minimum of 30% on my AF retirment check.  So, I'm pushing buttons such as the base commander via email and identify the snail at the local base hospital and his and the AF medical board scheme to do the slow crawl.  Now, were moving forward and it's not because the base commander gives a **** but has knowledge of this issue and must act to cover his own ass in case CNN wanted to ask questions.  So, now the good neuro doctors is ready to work.  Did a spinal tap on the 1st appointment with him and 10 vials of blood and just over two weeks later called and said no MS and good to go!  He was not aware I had already got copies of my CD ROM with CT_MRI and blood word from his young Airman tech.  Words on this info say.... "multiple rare lesions on the brain and Demyelinating Desease". Demyelinating Desease is about the same shid at MS. So, I ask him when he was just so ready to end the converstaion and wash his hands and grin about his good deed!  What about the lesions on my brain sir?  Very quickly said it could be cholesterol or maybe a previous stroke.  Was not at all willing to discuss anyting else and to forward me to the medical board agin without a diagnosis.  I'm thinking and I hope you are thinking and this is my question if you guys have a wife or a friend in the field.... multiple rare lesions on the brain, and I'm having for years now numbness in my arms and since last Feb 08 I had left side of my head go number fron eyebrow to rear of neck and below my left ear.  I continue daily to have left head numb/tingling/burning deep down within the brain and it's triggered by emotions.  Anger/deep concentration/laughter will trigger this at almost anytime and last for hours to days even with meds for nerves and or pain.  So, I pushed for a refferal and they simply have said that they are not concerned with lesions on my brain.  Lesions are common and lots of people have lesions on their brain and it does not mean anything and to stop worring about it.  Anywho... guess we can all turn to google but wanted a real quick spill from a doctor or a friend of a doctor that says lesions are serious or yep, common, we all have them and especially if you ride a Busa!  What say you?
 
I know nothing of the situation you describe, but am behind you 100%; please keep us posted on how this progresses.
 
I wish I knew someone who could help you. Maybe you could find a recommendation for a good doctor out there and schedule a consultation to get another opinion?
 
I wish I knew someone who could help you.  Maybe you could find a recommendation for a good doctor out there and schedule a consultation to get another opinion?
I called local today with a neuro and they will not do out of pocket appointments for cash and only would schedule me if I have a referral and use TRICARE.  They are as well booked for several months.  I'll meet the medical board on 8 Jul and with no diagnosis just as the AF planed.
 
Hey Bud, I asked my uncle, he lives in England and his name is Dr.James Leonard.  Do a google search on him, the man is a genius.  He said that lesions on the brain are absolutely NOT normal and without a full and proper exhaustive diagnosis, that the Air Force can not just shove you out into the cold.  I hate to say this but you need a good lawyer ASAP!  My wife is an E-6 in the navy and her rate is corpsman.  She told me also that you need to immediatley force the issue and contact your home state congressman and or senator and fully explain the situation. Ask for their help in pushing the air force to do the right thing here. After all that is what we have a government for.  She said that in all cases she knows of where serious medical conditions were discovered during the med boarding out process, that the only way to stop it and get the correct diagnostic and treatment action was to go the route of contacting a state representative and letting your command know that you have retained council and are seeking action through your political state representatives.  Get on it Airman!  You face a tough and mentally challenging task, fight through it!  Keep us and me posted, if I can do anything such as clarify any questions with my wife or uncle let me know.  I will PM you my cell# now.
 
The org is certainly a great place when people like you are willing to help like this Cblast. My hat is off to you sir!
 
I would do what ever you can in your power to not deal w/ Air force Doctors or try to see a reputable civilian specialist. In my AF days I saw way too much F%#@-ups caused by doctors and had no accountability, even saw a mis-diagnosis that ended in the death of a good friend of mines' son. I never let them see my family.
 
The org is certainly a great place when people like you are willing to help like this Cblast. My hat is off to you sir!
CBlast, just sent you a reply to your PM and many thanks on this. I'm pretty much stuck between a rock and a hard spot with a referral since I had one and it was obviously a setup and she had been contatacted prior to my arrival and is the one that said the "I don't want to hear anyting about the lesions", "lots of people have lesions". An appointment here looks like a no go for they will not do an appointment for cash and must have a insurance company behind me which I don't understand. I do appreciate your comments and concerns and I'm still thinking about how to proceed.
 
Responded to your PM bud and I just cut and pasted all of the info and sent it as an email attachment to my uncle. I could not get an answer on the phone, then I looked at my clock and realized it is 0515am for my uncle and aunt. Oh well, they could use a jumpstart today anyway.
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I will get back to you as soon as I hear from them. They will probably choke down some bangers and mash before getting back to me.
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Hey Bud, I asked my uncle, he lives in England and his name is Dr.James Leonard. Do a google search on him, the man is a genius. He said that lesions on the brain are absolutely NOT normal and without a full and proper exhaustive diagnosis, that the Air Force can not just shove you out into the cold. I hate to say this but you need a good lawyer ASAP! My wife is an E-6 in the navy and her rate is corpsman. She told me also that you need to immediatley force the issue and contact your home state congressman and or senator and fully explain the situation. Ask for their help in pushing the air force to do the right thing here. After all that is what we have a government for. She said that in all cases she knows of where serious medical conditions were discovered during the med boarding out process, that the only way to stop it and get the correct diagnostic and treatment action was to go the route of contacting a state representative and letting your command know that you have retained council and are seeking action through your political state representatives. Get on it Airman! You face a tough and mentally challenging task, fight through it! Keep us and me posted, if I can do anything such as clarify any questions with my wife or uncle let me know. I will PM you my cell# now.
This is good advice.

I recommend at least talking to an attorney. It takes time to make things happen and it sounds like you are running short.

Keep looking for a doc to get a referral and talk to an attorney. You might have to go travel to see a different MD. Contact Mayo Clinic I think they may see you without a referral but I am not for sure.

Good Luck!!
 
Good luck my military brethran. If the AF pushes you out you can pursue this with the VA. I had to do that with my back. I got a minimum rating from the Army. When I had to go in for surgery the VA upgraded my rating.
 
Good luck my military brethran. If the AF pushes you out you can pursue this with the VA. I had to do that with my back. I got a minimum rating from the Army. When I had to go in for surgery the VA upgraded my rating.
That was the other thing I was going to suggest. It may not be as beneficial as far as the retirement check goes but the VA should be able to help you out with your medical concerns.

One of the reasons I enjoy working at the VA is because I have always been impressed with the care we provide.
 
All great info and much appreciated. I have meet with the DAV just months ago and they prepared all my medical issues to forwar by myself to the VA. However, that is when this other stuff became apparent. At the time I met with the DAV the 1st thing the guy said without me saying a word was... so, you have MS! that was before they had made any comments from the AF doc so I told him that it's consistant with MS. He said again, what I see here says you have MS and I'm putting it down and he did so it will be turned into the VA. However, we now know that AF Capt doctor came bacy and said good to go and no MS but will not address or pursue the lesions except to say they are of no concern and lots of folks have lesions on the brain. Working this hard and getting my old blood pressure up as I work it. You guys are great and appreciate you just being here.
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If the diagnosis is in writing, get a copy if you can. And maybe a local tv station (or national news source, like CNN, or the NY Times) would be interested in the story? That'll get some attention.
 
I wont comment on your medical situation, but as a military leader, the biggest nut roll is a CONGRINT. There's nothing like a congress person making inquiries. Commands have to respond within 2-3 weeks. The congress person makes the inquiry via your branch secretary, then it follows the chain of command all the way down to you. how many stars, birds, clusters, bars and rockers will be dancing for this inquiry. It can produce results.

As devils advocate, most CONGRINTS do not produce any significant action except for distracting the personnel involved through the time and effort needed in answering the inquiry. The central issue in most of the CONGRINTS that Ive been part of have been a disconnect in communication between the parties involved and a failure to define expectations.

If nothing is done regarding your med board sumbission, it can be resubmitted. Given that there is new information since the initial sumbission, the resubmit should include an addendum. Speak to the med board office at your MTF. There is an appeals process. Its a process and your at the beginning. Get to know how the med board process works. I have several Marines at every stage: light duty, LIMDU, PEB, MEDBOARD, MB appeals, MB addendum... etc.

Lastly, I can appreciate the anxiety involved when a brain lesion is found. Ive participated in the care for far too many great service members in similar predicaments. I will pray for your situation at church tomorrow. Focus on the medicine. Your health is far more important than the MEDBOARD/VA percentage/benefit/admin disposition.

HooYAHH Airman!
 
Sent ya another PM with the response from my aunt and uncle. I think their advice is sound bud!
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Also, yes, gettting a congressional inquiry started will have everyone and their dog jumping through hoops. How is that worse than the shaft you are getting right now. If the entire chain of command is forced to focus on your situation and rectify it under scrutiny, than geuss what, all of a sudden they can not just sweep the whole thing under the nearest rug. Call yor congressmans representative, call your lawyer, call the media. If they are doing absolutely the right thing with your best intrests at heart than they should have nothing to hide. Fire back motivator!
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I wont comment on your medical situation, but as a military leader, the biggest nut roll is a CONGRINT.  There's nothing like a congress person making inquiries.  Commands have to respond within 2-3 weeks.  The congress person makes the inquiry via your branch secretary, then it follows the chain of command all the way down to you.  how many stars, birds, clusters, bars and rockers will be dancing for this inquiry.  It can produce results.

As devils advocate, most CONGRINTS do not produce any significant action except for distracting the personnel involved through the time and effort needed in answering the inquiry.  The central issue in most of the CONGRINTS that Ive been part of have been a disconnect in communication between the parties involved and a failure to define expectations.  

If nothing is done regarding your med board sumbission, it can be resubmitted.  Given that there is new information since the initial sumbission, the resubmit should include an addendum.  Speak to the med board office at your MTF.  There is an appeals process.  Its a process and your at the beginning.  Get to know how the med board process works.  I have several Marines at every stage: light duty, LIMDU, PEB, MEDBOARD, MB appeals, MB addendum... etc.

Lastly, I can appreciate the anxiety involved when a brain lesion is found.  Ive participated in the care for far too many great service members in similar predicaments.  I will pray for your situation at church tomorrow.   Focus on the medicine.  Your health is far more important than the MEDBOARD/VA percentage/benefit/admin disposition.

HooYAHH Airman!
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I wont comment on your medical situation, but as a military leader, the biggest nut roll is a CONGRINT.  There's nothing like a congress person making inquiries.  Commands have to respond within 2-3 weeks.  The congress person makes the inquiry via your branch secretary, then it follows the chain of command all the way down to you.  how many stars, birds, clusters, bars and rockers will be dancing for this inquiry.  It can produce results.

As devils advocate, most CONGRINTS do not produce any significant action except for distracting the personnel involved through the time and effort needed in answering the inquiry.  The central issue in most of the CONGRINTS that Ive been part of have been a disconnect in communication between the parties involved and a failure to define expectations.  

If nothing is done regarding your med board sumbission, it can be resubmitted.  Given that there is new information since the initial sumbission, the resubmit should include an addendum.  Speak to the med board office at your MTF.  There is an appeals process.  Its a process and your at the beginning.  Get to know how the med board process works.  I have several Marines at every stage: light duty, LIMDU, PEB, MEDBOARD, MB appeals, MB addendum... etc.

Lastly, I can appreciate the anxiety involved when a brain lesion is found.  Ive participated in the care for far too many great service members in similar predicaments.  I will pray for your situation at church tomorrow.   Focus on the medicine.  Your health is far more important than the MEDBOARD/VA percentage/benefit/admin disposition.

HooYAHH Airman!
I hear you and appreicate the thoughts and concerns.  I think I have exhausted any and all means that I can think of at the moment.  I have emailed my state (home of records) governer via their web address approx two weeks ago and got no response.  As well the local governer here in Colorado and no response from that bird either.  Maybe a telephone call would get a better response.  Maybe Oprah... LOL.  You never know what Oprah might do if she wanted to she gould ring some bells. There is so much behind the scenes on this... my ulcer and nevers is long time running. I don't drink nor smoke and it's just pure ulcers due to being treated very badly on several occasions over ten years or so.  Two bleeding ulcersn and surgery for those, porbs, barrets, flame extensions full stomach wrap of my intestions becuase it ate away the valves from the acid and was told it will turn into cancer if I don't get out and change my lifestyle (meaning get the hell out of the AF)as suggested by an Army doctor.  I tried to retire in Nov and the Commander went out of his way and addmitted to me and had Randolph Personnel center to shut down my retirement request.  One of my females came to me in Oct with a complaint that the commander had been buying her clothing items and she is married.  I went to his boss a full bird Colonel and was told by the 06 that I was the 12th individual to go either IG or MEO on him.  You are thinking what I said, yes "then why the hell is he still wearing that uniform"?  So, I proceeded with the IG complaint and they shut down my retirement request even though I'm over 20, they shut down my assignment selection to Scott AFB in IL and tried to deploy me front line to a place with an Army detachment and required 3 weeks special training in KS prior to departure and I'm an IT specialist.  You know, I've been SWA to about 16 different places and worked for 6 or so 3 star generals and climbing on 20 storie facilities like Baharain setting up SECURCOM MRSAT for the STU-III secure phones and transfering mail to and from home base extensivily thoughout the AOR and was never trying to evade a deployment... but this time, I was on to many meds and when they tried to walk me out in 3 days the docs said "NO" and coded me and that made the pissing contest with the Commander even worse for he looked like an ediot to the SW or Base Commander and the rest is nerves/anxity/depression to a level that I never new existed. I fell the near meltdown is a result of the brain problems not to mention to many meds.  Glad you guys are here and I do appreicate the ears and hope you all understand there are times that a man has done about all he can do and still needs help and may be none left.  Thanks much sir for the words. HooYAHH
 
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